My doctors failed me!!!

But the story doesn't end there. Luckily, I went to a chat forum and asked
the following question: "Please will you describe Fibromyalgia for me?"
 
    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted 11/5/2004 7:14 PM (GMT -7)

    My main problem is that my muscles contracted in a really painful way.
    Then next day my muscles around my abdomen were SO tight, they began
    to bend me over.

    It's been a month and my voice is stronger. I think it was so whispy for
    awhile because of how tight my diaphragm muscles were.

    I have some severe pain in my right thigh which has had neuropathy for
    awhile. That pain is stinging, whereas it used to be like a really bad sunburn.

    I felt like the doctor was just putting me off when he said I had
    fibromyalgia. The nurse asked me how long I'd been fat, and how did I
    do things before, as if I were shirking things.

    This came on like FAST. It hit, and then it hasn't gone away.
    The day before it hit, I was working in the garden building a stone wall. Now
    I haven't been outside except on a guerney on the way to the ambulance...

    Is this how you've experienced FM????

    And if not, what's it like for you???
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    simple8127
    New Member

    Date Joined Oct 2004
    Total Posts : 2
    Posted 11/5/2004 10:53 PM (GMT -7)

    I was diagnosed w/ fibromyalgia about one year ago. I had gone to the
    doctor because I for about 6 months could not push down on my hands
    w/out pain. At the time I figured the rheumatologist just told me I had
    fibromyalgia because he couldn't come up w/ a definate diagnoses. However
    this year, one night at work I felt like I could not walk w/out extreme effort.
    It felt like every muscle in my body had had a severe workout. This
    continued for about 3 weeks and I could not work. I have since gone back to
    work but I have to take off about every few days if I do any extra activity.
    And forget about housework. I can't even run the sweeper over my floors
    w/out being unable to move after that for many hours. I also have to sleep at
    least 12 hours a day.  






    Consider

    Date Joined Nov 2004
    Total Posts : 20
    Posted 11/5/2004 11:30 PM (GMT -7)

    Hi Simple.
    Thank you so much for explaining to me.

    I don't quite understand, though. When you say your muscles feel like they
    had a severe workout... do your abdominal muscles ever feel like they are
    going to roll up? It is the most odd feeling.

    Oh, I know... is it all your muscles?
    Mine is just my abdominal, side, back, and diaphragm muscles. My legs and
    arms are fine. My neck gets tight but that's probably stress.

    Has your voice ever sounded really weak and wispy from this??

    At first I couldn't make a cup of coffee in the morning without going back to
    bed because of how tight my muscles got. It would take me hours to get a
    cup of coffee. And I was eating saltines because they were not too heavy.
    Mostly everything was too heavy for me. Like my Brita water pitcher: with
    less than an inch of water in it, it began to pull really uncomfortably on my
    muscles.

    Luckily I get community meals now, that are brought to my home.

    And I can lift the Brita pitcher when it is full, now.

    But if I'm up a total of ten minutes in the morning, that's pretty much it. I
    have to totally recharge.

    I don't sleep any more than I used to. But I have to stay in bed because
    sitting on a chair makes my muscles clamp really tight... I have my computer
    in bed with me... talk about an unnatural love affair... : )

    If you have the time to clarify any more, I'd really appreciate it.

    Thank you soooo much.
    --------------------------------------------------------------------------------
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    Learn what warning signs to look for --
    Karen Kline


    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted 11/6/2004 1:51 AM (GMT -7)

    Hi ampsy... no it's not like pinched nerves at all. I've had that before.
    What I really think it is, is tetanus.
    But the doctor said that was rare so I couldn't have it.

    I think he said it was fibromyalgia because ...
    I don't know, but I didn't feel like he took it seriously. So when I read the
    post where the doctor wouldn't give her pain medication, I thought about the
    doctor I saw. I mean, I felt like he thought I was acting to get out of doing
    things.

    The one thing that's good about learning about Fibro, is that maybe
    B12 helps. I think one reason the doctor didn't think I could have
    tetanus, is that he didn't really see the contractions, and although I was
    really sick, I wasn't that close to dying and I guess tetanus kills a lot of
    the people who get it. I think because I have more B12 in my system
    than most 60 year olds that I was lucky.

    Thank you so much for writing...

    The reason I mentioned the wall, was just because the nurse was sounding
    like I'm lazy and if I wanted to I wouldn't feel bad... I was loving building
    the wall. The muscle contraction the next day was just sudden, and after that
    my muscles were tight...

    Does Ibuprofen help with fibro????
    --------------------------------------------------------------------------------
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    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted 11/6/2004 1:55 AM (GMT -7)

    ampsy, what happened to your post????
    --------------------------------------------------------------------------------
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    ampsy
    Veteran Member

    Date Joined Feb 2004
    Total Posts : 763
    Posted 11/6/2004 3:00 AM (GMT -7)

    hi, sorry about that, 'BRAIN FOG!!!pressed the wrong button!!!
    my father had P. anemia & that was leukemia!! he's dead now after
    numerous blood transfusions {12 mths} he lasted after dx..
    I still say or think you may have pinched spinal nerves {a very painful
    condition} worth getting it checked out, doesn't sound like fms to me, I've
    had it 30 yrs, take care, wendy xxx

    --------------------------------------------------------------------------------

    "QUALITY VS QUANTITY, OUR CHOICE"
    WENDY AUSTRALIA



    jk
    Registered Member

    Date Joined Oct 2004
    Total Posts : 146
    Posted 11/6/2004 6:07 AM (GMT -7)

    Hi nice to meet you Consider, although not under these circumstances
    though. Sorry you are feeling so badly. I have not been dx with anything yet,
    but i do have an appt with a rhematologist in a week and a half. And this I
    had to drag out of my doc, so I understand your frustration with your doc.
    But from what I have read and experienced, I must agree with Wendy that
    what you ae describing does not sound like fms. Youe doc is a general
    practioner? You need to be seen by a rheumatologist or a doctor that
    specialzies a little more in fms than just a reg MD. Fms seems to come more
    over time then a sudden attack like you described. I think you should
    demand a referral, or if your insurance allows, go ahead and make an appt
    with a rheumatologist, and if he does not think its fms he can probably steer
    you in the right direction, he will probably take blood tests etc. It sound like
    you are not getting any help form the doc you have now. That really scares
    me. You mayy have to seek otu a new MD who will take you serioulsy, this
    is your well being here, and if you had the proper care, I think your quality
    of life may improve drastically, please find another doctor who will help you.
    ask many questions here, the ladie here are very kind, and knowledgeable
    too, they can give you many tips and advice. Please keep us posted, take
    care...love...Sheryl
    --------------------------------------------------------------------------------
    ***Take Care.....Sheryl***
    Erma Bombeck said...I May Not Always Understand You, But I'm Always
    Willing To Listen.
    Erma Bombeck said...If You Can't Stand the Heat.......Turn Off the Stove..



    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted 11/6/2004 8:01 AM (GMT -7)  

    ampsy said...
    hi, sorry about that, 'BRAIN FOG!!!pressed the wrong button!!!
    my father had P. anemia & that was leukemia!! he's dead now after
    numerous blood transfusions {12 mths} he lasted after dx.. I still say or
    think you may have pinched spinal nerves {a very painful condition} worth
    getting it checked out, doesn't sound like fms to me, I've
    had it 30 yrs, take care, wendy xxx

    Hi ampsy,
    I am so happy to find your message this morning. Yesterday I'd thought
    maybe you found me irritating in the end, and had wished you hadn't
    answered. So this is great. thank you.

    I'm not aware that pernicious anemia is leukemia. I'm sorry to hear about
    your father dying. It sounds like you had a very hard year. Did the stress
    make your illness worse? It seems like it would. I hope you're feeling better,
    or that you will soon feel better.

    My pain isn't like a pinched nerve, though. This is like, for instance the
    woman from Kitchen Angels came over to interview me, and she was
    really nice. I explained to her that the ER doctor had said I couldn't
    have tetanus because it is rare. She was only here a half hour. But
    during that short time, with me lying in bed and never once getting up
    because I'd left the door open so she could just come in, my muscles
    got tighter and tighter till they were just like a band around my middle
    and one that was making it hard to breathe.

    This last week I've had major neuropathy pain, meaning that it's in the same
    place as I've had neuropathy pain before: my right thigh. Only this is an
    extremely sharp pain, whereas before the pain was like a bad, bad sunburn.
    Yesterday I decided to try two B12 shots instead of one. One in the a.m.
    and one in the p.m. and I gave them to myself in my right thigh even though
    it feels so weirdly numb.

    This morning the pain didn't wake me, but I forgot to take melatonin, so I
    only got four hours of sleep for that reason.

    If your dad had p.a., then from what I understand about it, there's a good
    chance you inherited it, or a predisposition to it. Newer research seems to be
    saying that something called B12 malabsorption illness precedes p.a. I guess
    the idea is that p.a. is what happens after a body has been very low on B12
    for a pretty long time. So, if you have lines on your fingernails (that's my old
    standby for a folk-look at how I'm doing) you might want to get some
    sublingual (methylcobalamin) B12 and try that. In my experience B12 makes
    a lot of difference in reducing how much pain I feel. It's pretty cheap at
    Walgreen's.

    thank you again for writing to me... I REALLY appreciate it.
    --------------------------------------------------------------------------------
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    Your fingernails reflect your health --
    Learn what warning signs to look for --
    Karen Kline


    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted 11/6/2004 8:07 AM (GMT -7)  

    simple8127 said...
    I was diagnosed w/ fibromyalgia about one year ago. I had gone to the
    doctor because I for about 6 months could not push down on my hands
    w/out pain. At the time I figured the rheumatologist just told me I had
    fibromyalgia because he couldn't come up w/ a definate diagnoses.
    However this year, one night at work I felt like I could not walk w/out
    extreme effort. It felt like every muscle in my body had had a severe
    workout. This continued for about 3 weeks and I could not work. I have
    since gone back to work but I have to take off about every few days if I do
    any extra activity. And forget about housework. I can't even run the
    sweeper over my floors w/out being unable to move after that for many
    hours. I also have to sleep at least 12 hours a day.

    Hi Simple,

    I woke up this morning thinking about you and what you wrote. Not being
    able to push down on your hands without pain is a pretty clear image. And 6
    months makes it pretty clear that it wasn't an overnight thing.

    I forget how rhumatism and arthritis are different/similar... are they joint
    oriented??? Are you saying that your muscle pain is also related to your
    joints?

    Thank you so much for writing to me. It has helped me begin to understand
    a little more.
    --------------------------------------------------------------------------------
    www.health-boundaries-bite.com/Fingernails.html
    Your fingernails reflect your health --
    Learn what warning signs to look for --
    Karen Kline


    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted 11/6/2004 8:25 AM (GMT -7)

    jk said...
    Hi nice to meet you Consider, although not under these circumstances
    though. Sorry you are feeling so badly. I have not been dx with anything
    yet, but i do have an appt with a rhematologist in a week and a half. And
    this I had to drag out of my doc, so I understand your frustration with your
    doc. But from what I have read and experienced, I must agree with Wendy
    that what you ae describing does not sound like fms. Youe doc is a general
    practioner? You need to be seen by a rheumatologist or a doctor that
    specialzies a little more in fms than just a reg MD. Fms seems to come
    more over time then a sudden attack like you described. I think you should
    demand a referral, or if your insurance allows, go ahead and make an appt
    with a rheumatologist, and if he does not think its fms he can probably
    steer you in the right direction, he will probably take blood tests etc. It
    sound like you are not getting any help form the doc you have now. That
    really scares me. You mayy have to seek otu a new MD who will take you
    serioulsy, this is your well being here, and if you had the proper care, I
    think your quality of life may improve drastically, please find another
    doctor who will help you. ask many questions here, the ladie here are very
    kind, and knowledgeable too, they can give you many tips
    and advice. Please keep us posted, take care...love...Sheryl

    Hi Sheryl,
    Nice to meet you, too. (also, not under these circumstances)
    Hmm... this post is looking very different... not sure why...
    Yes, you got it!!!! major frustration (to put it mildly) with my doc.
    My problem was that I'm major poor right now due to a privy pit my
    condo was built over. So doctors just would not see me because I
    didn't have any money. They said I had to go to the ER because the
    ER has to see people who don't have money...

    A major difference between what I have and fibromyalgia, is that I'm pretty
    sure that while mine is major serious, just like yours, mine is going to go
    away. Not quickly, but in the end if I just don't have a relapse.

    Sharing tips and advice is SOOOO helpful. That's why I did my web pages
    on B12, because my doctors just were no help and it's such a simple thing
    and it's such a common problem (according to the research... it's not just me
    saying that.)

    I was thinking this morning about a woman who wrote me last year after she
    found my web site. I think she said she has fibromyalgia and that B12 had
    helped her and she just wanted to share that with me. But then she told me
    about www.dadamo.com which is a web site about eating specific things that
    work well for whatever your specific blood type is. She swears by the diet.
    So I tried it and I was amazed. I'm A blood type, so for me it said that kale
    was good, and cabbage, not good. I used to eat a lot of cabbage because I'd
    read it was good for warding off colon cancer. So I switched. And it said
    brown rice was good for me (which I'd also had read was good for people
    with pernicious anemia) and in the first week I lost something like 7 pounds
    even though I was eating tons of food. It was like there'd been a swelling in
    my body, and that swelling began to go away. Later she wrote me that she'd
    lost a lot of weight, I mean several sizes. She wrote me after she'd been
    shopping and was so happy to be down to some tiny size. The thing about
    the diet that made the most difference to me was that it got rid of the
    constant diarhhea I'd had. Now when I eat the food they bring me (and it is
    totally dynamite food) I have the diarhhea again, but hey, it's just sooo great
    to have food. Before, after I got whatever it is I have, I couldn't stand up
    long enough to make anything and I was relying on saltines...

    Okay, I'm going on a bit... sorry.
    Thank you a lot for writing. I really appreciate it.
    Being alone in things like this is the WORST.
    You're great!!!! thanks for your kind words!!!!!
    --------------------------------------------------------------------------------
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    Your fingernails reflect your health --
    Learn what warning signs to look for --
    Karen Kline


    US Dawn
    Registered Member

    Date Joined Jul 2004
    Total Posts : 58
    Posted 11/6/2004 1:28 PM (GMT -7)

    Consider~
    FMS is a disease that emits pain in all 4 quadrants of your body (upper,
    lower, left, and right sides). What you have doesn't sound like FMS at all.
    You're only naming one area. Besides that, you'd have to go through a
    battery of testing, where they would eliminate various other illnesses, like
    Lupus or a pinched nerve - then have the 18 point test done. That's where
    they see how many of these specific points of your body are affected w/
    pain. If I were you, I'd get another opinion. I wouldn't even mention the
    previous diagnosis, so that you aren't just chucked into that diagnosis file
    incorrectly.

    Best of luck!
    Dawn  



    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted 11/6/2004 5:59 PM (GMT -7)

    Dawn, that's very clear information. Thank you so much!!!

    I kept wondering if something like the quadarant thing didn't have to be true.
    The quadrants you mention include arms and legs, right???

    I don't think the doctor was even trying to help me.

    The initial pain of the contractions was so bad that I was screaming.
    Dr. Raboff had me have a psychological evaluation before he did
    anything, besides a pain killer in the IV. I think he only took me even
    remotely seriously after the whole battery of illegal drug tests he had
    done on me came back negative.

    I told him that I'd accidentally jammed a darning needle into my toe and I
    didn't realize a part had broken off in my toe.

    He asked me some question that sounded as if he thought I had
    jammed the needle into my toe on purpose in an ineffective attempt to
    kill myself with tetanus.

    I mean he was really way off the deep end in how he seemed to be
    interpretting me. I think the major pain and the fact that I have some
    brain damage made it really hard for me to be clear, most of my energy
    was going into combating pain.

    The second time I was in the ER, a couple weeks later, the doctor
    seemed to be being guided by what Dr. Raboff had decided. So the
    second doctor just said, "Fibromyalgia" the way someone might say,
    "common cold." He didn't sound serious. He sounded like it was his
    suggestion for something I could get interested in and talk about, sort of
    as if my health weren't a real concern, but a hobby. Hypochondriac.

    They make me really angry.

    Earlier today, thinking about what people here had written to me, I realized
    that the feeling I have in my muscles is as if they are hardening, solidifying,
    seizing up. Because they tighten and draw me over as they do, it's very scary
    and I hurry back to bed so that I don't end up on the floor unable to move...

    thank you for writing.

    Can I still stay here for a bit???? I've learned so much from you guys. I am
    so grateful to you for your help.

    : )
    --------------------------------------------------------------------------------
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    Post Edited (Consider) : 11/6/2004 5:02:31 PM (GMT-7)



    Jeannie143
    Registered Member

    Date Joined Apr 2004
    Total Posts : 135
    Posted Yesterday 12:25 AM (GMT -7)

    I've been reading your posts and wondering, did the doctors give you a
    tetanus shot or run any kind of a tetanus titer or test? You're right that it
    does sound like tetanus... Is the darning needle still in your toe? Has anyone
    x-rayed it? You may want to go to a clinic or redi-care where you'll get a
    different opinon... If it's tetanus and the ER overlooked it then someone
    needs to do some remedial reading (I'm talking about the doctors, not the
    patient). It's very common, not rare. That's why people have to get booster
    shots for it about every 5 to 10 years. (Duh!)
    Anyway, hope you get some help soon.
    -------------------------------------------------------------------------------
    ______
    (((((()))
    _IiiiiiiiI
    @@@@
    @^,^@ ~ Jeannie


    ampsy
    Veteran Member

    Date Joined Feb 2004
    Total Posts : 763
    Posted Yesterday 1:25 AM (GMT -7)

    hi, Con, I don't think it's tetanus either! that comes out pretty quickly &
    affects the jaw muscles first, you said you were in a few car accidents & had
    a few whip-lash's, I still think it's pinched nerve's in you neck & back, the
    spine is very complex & affects the nerves pain in so many strange parts of
    the body, it seems to radiate around & can radiate around all your stomach
    & make it swell up, gee us humans a strange critter's!!!
    as was sugested by Dawn get another opinion.................
    --------------------------------------------------------------------------------

    "QUALITY VS QUANTITY, OUR CHOICE"
    WENDY AUSTRALIA


    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted Yesterday 12:43 PM (GMT -7)

    Jeannie143 said...
    I've been reading your posts and wondering, did the doctors give you a
    tetanus shot or run any kind of a tetanus titer or test? You're right that it
    does sound like tetanus... Is the darning needle still in your toe? Has
    anyone x-rayed it? You may want to go to a clinic or redi-care where you'll
    get a different opinon... If it's tetanus and the ER overlooked it then
    someone needs to do some remedial reading (I'm talking about the doctors,
    not the patient).
    It's very common, not rare. That's why people have to get
    booster shots for it about every 5 to 10 years. (Duh!)
    Anyway, hope you get some help soon.

    Hi Jeannie,
    I got the broken quarter inch of needle out about two days later. When I got
    a red line under my toe nail, I soaked my foot for several hours a day in
    Epsom salts, ate bottles of Vitamin C, and had extra B12 shots.

    When the red lines faded a bit, I felt relieved and forgot about the whole
    thing until I got the major contraction in my back muscles several weeks
    later.

    The doctors pretty much concentrated on giving me tests for illegal
    drugs. I think that was because I'd been screaming from the contraction
    pain and was not in a friendly happy mood.

    They gave me a tetanus shot and some antibiotic. I don't think they
    gave me enough antibiotic because they said I couldn't have tetanus
    because it's rare. One nurse said I couldn't have it because it comes
    from the soil. That's when I began to realize that because I grow my
    own veg, I'd been working in my garden with sandals on, before I
    came in to sew...

    I'm so sick now that I can barely get out of bed... well actually I've been
    better the last few days and I can be up for about ten minutes before my
    muscles feel as if they are turning to concrete.

    If I hadn't come to this forum, I wouldn't have recognized the difference
    between the uncomfortable somewhat hurting feeling of my muscles seizing
    up, vs. pain... you guys seem to have genuine pain a lot of the time. If I try
    to ignore my muscles when they tighten, then I get substantial pain, that feels
    like an apendicitis attack, but if I just shuffle as fast as I can to bed, then
    there's no real intense pain to speak of.

    I am so grateful to you for your help.

    I'm not quite sure what to do because of how incapacitated I am.
    -------------------------------------------------------------------------------
    www.health-boundaries-bite.com/Fingernails.html
    Your fingernails reflect your health --
    Learn what warning signs to look for --
    Karen Kline

    Post Edited (Consider) : 11/7/2004 11:46:45 AM (GMT-7)


    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted Yesterday 12:53 PM (GMT -7)  

    ampsy said...
    hi, Con, I don't think it's tetanus either! that comes out pretty quickly &
    affects the jaw muscles first, you said you were in a few car accidents &
    had a few whip-lash's, I still think it's pinched nerve's in you neck & back,
    the spine is very complex & affects the nerves pain in so many strange
    parts of the body, it seems to radiate around & can radiate around all your
    stomach & make it swell up, gee us humans a strange critter's!!!
    as was sugested by Dawn get another opinion.................

    Hi ampsy,
    My car accidents were well over ten years ago. I've had pinched nerves
    several times, and this doesn't even remotely feel like that.
    Because of how much stress I'm under, I don't really pay attention when my
    neck is stiff, or my jaw muscles.
    I think the fact I have so much more B12 than other older people (speaking
    on an average) that the disease couldn't work as fast.

    In fact, I've begun to think that when people get it and 4 out of 10 untreated
    people survive, that those people are ones who naturally have more B12 in
    their systems. Generally speaking, 4 out of 10 people have sufficient B12 in
    their systems....

    What Jeannie said about getting a tetanus shot every ten years is very
    important. I hadn't had one for over 30 years.
    --------------------------------------------------------------------------------
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    Learn what warning signs to look for --
    Karen Kline


    JulieJR
    Veteran Member

    Date Joined Feb 2004
    Total Posts : 313
    Posted Yesterday 10:43 PM (GMT -7)

    First of all, Wendy, Annie and I had a fine chat. I called her right after I got
    your card. Her computer should be up before long and we should have our
    girl back.
    Consider, When you said red lines, that said red flags up for me. Are the
    COMPLETLY gone.
    I got those red streaks running up my legs from the tiniest of cuts when I
    was 12. Before the docs were thru messing around and got down to doing
    some doctoring, I almost lost both legst to blood-poisoning. You might try
    having a complete blood work up, if you haven't already.
    If you have, I'd go to the next citys' ER and not tell them a thing about your
    previous dx. See what they come up with.
    Something is definetly wrong with how your case is being handled.
    Good luck to you, my friend.

    Julie
    --------------------------------------------------------------------------------

    CHASING FULFILLMENT IN LIFE CAN SEEM
    JUST AS IMPOSSIBLE AS TAMING A
    TORNADO
    -unknown


    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted Today 1:21 AM (GMT -7)  

    JulieJR said...
    First of all, Wendy, Annie and I had a fine chat. I called her right after I
    got your card. Her computer should be up before long and we should have
    our girl back.
    Consider, When you said red lines, that said red flags up for me. Are the
    COMPLETLY gone.
    I got those red streaks running up my legs from the tiniest of cuts when I
    was 12. Before the docs were thru messing around and got down to doing
    some doctoring, I almost lost both legst to blood-poisoning. You might try
    having a complete blood work up, if you haven't already.
    If you have, I'd go to the next citys' ER and not tell them a thing about your
    previous dx. See what they come up with.
    Something is definetly wrong with how your case is being handled.
    Good luck to you, my friend.

    Julie

    You guys had a chat???
    Okay, so I totally agree that my case isn't being handled properly.
    and I am so glad to hear that the red lines don't sound totally unfamiliar to
    you. I don't think I can drive to the next city, because of how sick I still am.
    And I think you are right, that the thing to do would be just to sort of start
    over and not mention the past.
    The lines weren't completely gone when I stopped soaking my foot in
    Epsom salts way back in August. When they got fainter, I thought well,
    sometimes when I have a scratch it stays red. So I stopped soaking my foot
    and forgot about it.

    Then this whole thing started at the end of September. When I had the
    antibiotics, the lines got fainter, but I ran out of the antibiotics and I couldn't
    get a doctor to give me anymore, and the lines got brighter again. I asked my
    caregiver to find a big, wide crock pot, and she did. But it took two weeks to
    get the Epsom salts and the pot because I only have her 3 hours a week.
    Since I got the crock pot, I can keep the water heated. It was way too heavy
    for me to move the water in any reasonably sized container, but now I'm
    stronger and I can ladle out a lot in a pitcher, and put fresh hot water in. So,
    the lines are fainter after 2 or three hours of soaking. But in the morning,
    they are no longer so faint.
    In the morning, my toe feels tender, too. which is really odd because I can't
    feel my kitty lick it, when she does. So I think the tenderness must have
    something to do with something deep that's wrong.
    I think that if the Epsom salts gets rid of the underlying infection...then I
    might get a lot better. I think I got better when I had the antibiotic because of
    that.
    But, there's no swelling. Did you have swelling when you were little and had
    the red line on your leg? Also, the lines don't go up my leg, they are just ever
    so tidy on my toe, under the nail.
    What was it in the end that saved your leg?????
    Thank you a lot for all the thought you put into this. I appreciate it. I'm
    feeling more hopeful.
    --------------------------------------------------------------------------------
    www.health-boundaries-bite.com/Fingernails.html
    Your fingernails reflect your health --
    Learn what warning signs to look for --
    Karen Kline

    Post Edited (Consider) : 11/8/2004 12:27:37 AM (GMT-7)


    jk
    Registered Member

    Date Joined Oct 2004
    Total Posts : 146
    Posted Today 11:25 AM (GMT -7)

    Hi Consider I went to the store today and bought the b-12 vitamin
    sublinguils, so far so good, not sick and I actually feel more energetic too.
    Oh I think in the above post by Julie she is speaking to wendy and letting her
    knw she spoke with a lady named Annie who is a very strong member of
    this forum here. ans then she goes on to speak to you. You seemed confused
    (lol) ANyways I will keep you posted about b-12 take care...
    --------------------------------------------------------------------------------
    ***Take Care.....Sheryl***
    Erma Bombeck said...I May Not Always Understand You, But I'm Always
    Willing To Listen.
    Erma Bombeck said...If You Can't Stand the Heat.......Turn Off the Stove..


    ginny
    Veteran Member

    Date Joined Feb 2003
    Total Posts : 334
    Posted Today 11:38 AM (GMT -7)

    Hi Consider,
    I just read your last post, and when you described the little red line under
    your toe nail, and huge red flag went up!!
    I'm a regular on the lupus forum, I also have Fibro. the red lines in your
    nails, (and you may find them in your finger nails as well), are called Splinter
    Hemmorhages. It is an indication that you have vasculitis or inflammation of
    the blood vessels. You need to show these to your doctor. I'm going to do a
    little investigating aon your symptoms. they don't sound like Fibro to me
    either. For me, fibro pain is a big old body ache, all over. If I get poked or
    bump into something, I am in extreme pain. It's like a big bruise all over my
    body. I'll get back to you shortly, now for some investigating.....

    ginny
    --------------------------------------------------------------------------------
    If God brings you to it, He will bring you through it.
    Happy moments, praise God.
    Difficult moments, seek God.
    Quiet moments, worship God.
    Painful moments, trust God.
    Every moment, thank God.


    ginny
    Veteran Member

    Date Joined Feb 2003
    Total Posts : 334
    Posted Today 11:55 AM (GMT -7)

    Hi consider,
    I've gone on the web and typed in "stiff or hard abdominal muscles". I get a
    pile of different diseases and conditions. So it's really important to see a
    different doctor. I don't think your current doc is handling your situation with
    the care you need.
    If you're curious, type the same words into your search engine and see what
    comes up. Maybe something will really hit home for you. Are you having
    any other symptoms at all? anything abnormal? Sure wish I could help you
    more, we all wish for that!

    Keep us posted!!

    Ginny
    --------------------------------------------------------------------------------
    If God brings you to it, He will bring you through it.
    Happy moments, praise God.
    Difficult moments, seek God.
    Quiet moments, worship God.
    Painful moments, trust God.
    Every moment, thank God.


    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted Today 12:46 PM (GMT -7)

    jk said...
    Hi Consider I went to the store today and bought the b-12 vitamin
    sublinguils, so far so good, not sick and I actually feel more energetic too.
    Oh I think in the above post by Julie she is speaking to wendy and letting
    her knw she spoke with a lady named Annie who is a very strong member
    of this forum here. ans then she goes on to speak to you. You seemed
    confused(lol) ANyways I will keep you posted about b-12 take care...

    Hi Sheryl, I am so happy to hear that you went to the store and got B12
    sublingual... and best of all, that it didn't make you feel sick when you used
    it. I am just so happy that I actually am getting tears in my eyes. B12 has
    made so much difference in my life... I am so happy to hear someone else
    having a good experience with it.
    That was really nice of you to explain the message. I was confused by Julie's
    message. It's funny how there are some things it's really good to try hard at,
    and others that we should just let slip by because they aren't really for us
    anyway.
    The doctor may not have helped me directly, but when he said to
    research fibromyalgia and that took me to this forum, it was really
    really good.
    thank you all so much.
    Thank you Sheryl for writing  : )  I appreciate it.
    Yes, please keep me posted on your experience with B12
    that will be so good
    and I'm keen to hear.   : )
    --------------------------------------------------------------------------------
    www.health-boundaries-bite.com/Fingernails.html
    Your fingernails reflect your health --
    Learn what warning signs to look for --
    Karen Kline

    Post Edited (Consider) : 11/8/2004 11:49:02 AM (GMT-7)


    jk
    Registered Member

    Date Joined Oct 2004
    Total Posts : 146
    Posted Today 12:54 PM (GMT -7)

    Hi Consider, thanks again for lettin me know about the b-12 sublinguals, I
    spoke with the pharmacist there and he agreed with what you told me, So I
    hope it continues to go good with it. Please do try what Ginny suggested and
    type in your search engine the diffenet symptoms you have and see what
    comes up an dif any of it applies to what you are feeling. I hope you ae able
    to get there right care you deserve and need take care.....
    --------------------------------------------------------------------------------
    ***Take Care.....Sheryl***
    Erma Bombeck said...I May Not Always Understand You, But I'm Always
    Willing To Listen.
    Erma Bombeck said...If You Can't Stand the Heat.......Turn Off the Stove..


    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted Today 1:01 PM (GMT -7)

    ginny said...
    Hi Consider,
    I just read your last post, and when you described the little red line under
    your toe nail, and huge red flag went up!!
    I'm a regular on the lupus forum, I also have Fibro. the red lines in your
    nails, (and you may find them in your finger nails as well), are called
    Splinter Hemmorhages. It is an indication that you have vasculitis or
    inflammation of the blood vessels. You need to show these to your doctor.
    I'm going to do a little investigating aon your symptoms. they don't sound
    like Fibro to me either. For me, fibro pain is a big old body ache, all over.
    If I get poked or bump into something, I am in extreme pain. It's like a big
    bruise all over my body. I'll get back to you shortly, now for some
    investigating.....

    ginny

    Hi Ginny,
    Thank you sooo much. I tried to look them up on the internet when I first
    got them, but I couldn't find anything. "Splinter Hemmorhages" sounds like a
    perfect name for them... they are so fine, not good-fine, but thin-fine like a
    splinter.
    It seemed to me that my Polish grandparents had talked about this kind of
    thing when I was a child, but just their mention of it as not a good thing was
    all I remembered. And no one I knew seemed to have any acquaintance with
    the idea.

    I tried to show the doctor, he wouldn't look at my toe, in fact he
    interrupted  me saying he knew what I was going to say and that I
    don't have an infection.

    I told him that the red lines had gotten fainter when I had antibiotic,
    and when the antibiotic ran out, they got worse again and I got much
    sicker.

    He said that the placebo effect could work that way.

    So when he said I should research fibromyalgia, I felt like he was
    insulting me and really everyone with fibromyalgia.

    So you have major pain if you bump into something... all over your body?
    That is so NOT like what I'm experiencing.

    How do you handle the pain?

    The major pain in my right thigh (my injured toe is on my left side) seems to
    be diminishing as a result of putting Epsom salt towels -- wet and warm -- on
    it... and more B12.

    Gosh, how totally nice of you to think about this with me. Thank you so
    much.
    One thing's for sure, it's really scary when a doctor totally ignores you
    and you feel so bad. I keep thinking of people who are less aggressive
    than me, and how you hear on the news sometimes about someone
    who died in an ER waiting room and no one really noticed...

    Okay... I'm straying... but I do feel that it would be good if more people had
    kind and helpful people to turn to.

    Thank you SO much.  : )
    --------------------------------------------------------------------------------
    www.health-boundaries-bite.com/Fingernails.html
    Your fingernails reflect your health --
    Learn what warning signs to look for --
    Karen Kline


    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 20
    Posted Today 1:08 PM (GMT -7)

    ginny said...
    Hi consider,
    I've gone on the web and typed in "stiff or hard abdominal muscles". I get a
    pile of different diseases and conditions. So it's really important to see a
    different doctor. I don't think your current doc is handling your situation
    with the care you need.
    If you're curious, type the same words into your search engine and see
    what comes up. Maybe something will really hit home for you. Are you
    having any other symptoms at all? anything abnormal? Sure wish I could
    help you more, we all wish for that!

    Keep us posted!!

    Ginny

    Hi Ginny,
    There's a thing called FirstConsult. com (I think it's com) that I found and
    you can get a thirty day free trial. I think I filled out the application in such a
    way that you couldn't really tell I'm not a doctor or nurse.
    That site has really great presentation. You might check it out.

    I'll go try the words you used.

    I'm feeling like the red lines are the key here... they do go away a little when
    I soak my foot in Epsom salts... but that's hours a day and it just takes all
    my time because I always have to keep resting.

    Okay, I'm going to read the rest of these messages then go type in those
    words.

    Thank you so much ...
    Because I'm so sick, I can't drive somewhere else,
    and I'm pretty much alone, so I don't have anyone else to drive me...

    Do you think the Epsom salts could eventually drive out the infection all
    together?
    --------------------------------------------------------------------------------
    www.health-boundaries-bite.com/Fingernails.html
    Your fingernails reflect your health --
    Learn what warning signs to look for --
    Karen Kline



    Hi again consider, I plugged in some info on my search engine for natural
    antibitocs and this is what i came up with, Garlic Oregano oil, Grapefruit
    seed oil extract, iodine(seaweed), and food: cabbage(which I think you
    mentioned before too) cauliflower, brussel sprouts, broccolli, raw garlic and
    onions. So I dont know if these will help or not, but you could try? I am sure
    those oils are in a health food store like GNC or somewhere like that, if you
    can someone to get it for you. Hope this helps some...
    --------------------------------------------------------------------------------
    ***Take Care.....Sheryl***
    Erma Bombeck said...I May Not Always Understand You, But I'm Always
    Willing To Listen.
    Erma Bombeck said...If You Can't Stand the Heat.......Turn Off the Stove..



    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 23
    Posted Today 3:22 PM (GMT -7)

    ginny said...
    Hi consider,
    I've gone on the web and typed in "stiff or hard abdominal muscles". I get a
    pile of different diseases and conditions. So it's really important to see a
    different doctor. I don't think your current doc is handling your situation
    with the care you need.
    If you're curious, type the same words into your search engine and see
    what comes up. Maybe something will really hit home for you. Are you
    having any other symptoms at all? anything abnormal? Sure wish I could
    help you more, we all wish for that!

    Keep us posted!!

    Ginny

    Hi Ginny,
    Well I checked out the splinter info, and I don't think it's something that
    serious with my heart. It still could be something in my blood, but there
    weren't that many pages that were very easy to understand.
    The stiff and hard abdominal muscles thing gave me a lot of things to rule
    out, and all of them can be ruled out.
    One thing that struck me, though, was that tetanus was not mentioned.
    While if one reads about tetanus, it talks about tight abdominal muscles. So
    there's a bit of a disconnect here.
    I should soak my foot again... it takes so much time to soak, and then rest
    and then make something to drink with a lot of vitamin C.
    I had to move my little oil filled radiator so I could warm the bathroom to
    take a shower, and that took so many separate tries... because I couldn't
    finish it all at once.
    The difference between well and ill is massive.
    Thank you again for the suggestions. I really appreciate it.

    (I just ate a lot of raw garlic on the suggestion that it acts as a natural
    antibiotic.)
    : )
    --------------------------------------------------------------------------------
    www.health-boundaries-bite.com/Fingernails.html
    Your fingernails reflect your health --
    Learn what warning signs to look for --
     Karen Kline


    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 23
    Posted Today 3:32 PM (GMT -7)

    JulieJR said...
    Consider, I truly think it's time to quit messing around, get to a hospital,
    and find out if your body is filled with infection or not. If those red lines
    fade with the help of antibiotics somethings up!! If that infection gets to
    your heart or your brain, your dead!!
    You need to quit trying to diagnose this yourself, quit jacking around with
    this quack of a doctor, and find someone who will help you, even if it
    means calling an ambulance.
    Think about it! You've already lost all sensation in your toe, what's it
    going to take to convince you that something is seriously up? We are not
    MD's here.
    PLEASE CALL SOMEONE TO TAKE YOU TO THE HOSPITAL WHERE
    THEY CAN TO A COMPLETE BLOOD WORKUP! QUIT TALKING TO
    THIS DR. YOU'VE BEEN DEALING WITH AND GET TO A DR. WHO
    KNOWS WHAT THEY ARE DOING.
    Julie

    Yes, that seems perfectly reasonable. But as I say, I was sent here by a
    doctor who refused to even look at my toe.
    When I went to Whole Life Clinic, October 7, 2004, that's when I had
    the horrid contractions in my back and they called an ambulance. The
    ER doctor insisted I have a psychological evaluation before he did
    anything -- except some pain killer in the IV.

    I specifically asked them to call my traumatic brain injury case manager
    to come to the hospital to help me explain because with the pain I was
    having a hard time and I was MAJOR irritable. But they totally ignored
    me, except the doctor asked if I'd had a head operation.

    I haven't lost all feeling in my toe. And I had peripheral neuropathy to start.
    What scares me is the muscle tightening and how sick I get when I've only
    been up a tiny while.
    Remember I came to this forum specifically because the second ER
    doctor said I had fibromyalgia, but he only wrote down, "myalgias"...
    and he said said I should research fibromyalgia.
    What I think is that this happens to a lot of people who are in poverty,
    like me. Especially if they have brain damage and it's harder for them
    to explain.

    I even tried taking in a journal of the symptoms the second time I went
    to the ER, that time I called the ambulance because I'd had a bad
    contraction in my thigh that felt like the contractions in my back... but
    they totally pooh-poohed it saying, "You wrote up a long explanation."
    I said it wasn't an explanation, it was day by day how I felt and what I
    noticed.

    Soooo, now I'm eating garlic and soaking my foot in Epsom salts in lieu of
    antibiotic.
    I'm getting scared, so I think I'll sign off.
    --------------------------------------------------------------------------------
    www.health-boundaries-bite.com/Fingernails.html
    Your fingernails reflect your health --
    Learn what warning signs to look for --
     Karen Kline


    ginny
    Veteran Member

    Date Joined Feb 2003
    Total Posts : 337
    Posted Today 4:37 PM (GMT -7)  

    As per your last question, "will the epsom salts drive out the infection
    eventually?" Consider, I don't think this is an infection you're dealing
    with. If it is vasculitis that is making the thin lines under your nails,
    then antibiotics are the furthest thing you need to be taking. Vasculitis
    is an inflammatory condition that requires anti-inflammatory meds to
    solve it. Meds like prednisone(corticosteroids). The fact that you have
    these lines on your legs,makes me even more suspicious. You also said
    in one of your postings that the pain in your abdomen feels like an
    apendics type pain. I agree with JulieJR, get to a hospital. NOW. I
    don't like how all this is sounding either. Something serious is going on
    and you need help right away. If you are reading this and haven't seen
    a doctor or gone to the ER, GO NOW!!!!!! And don't go to the doctor
    that you just saw!

    We want to hear from you later, so make sure you post okay!!

    Prayers are with you,

    Ginny
    --------------------------------------------------------------------------------
    If God brings you to it, He will bring you through it.
    Happy moments, praise God.
    Difficult moments, seek God.
    Quiet moments, worship God.
    Painful moments, trust God.
    Every moment, thank God.



    Consider
    Registered Member

    Date Joined Nov 2004
    Total Posts : 23
    Posted Today 5:07 PM (GMT -7)

    JulieJR said...
    Consider, I truly think it's time to quit messing around, get to a hospital,
    and find out if your body is filled with infection or not. If those red lines
    fade with the help of antibiotics somethings up!! If that infection gets to
    your heart or your brain, your dead!!
    You need to quit trying to diagnose this yourself, quit jacking around with
    this quack of a doctor, and find someone who will help you, even if it
    means calling an ambulance.
    Think about it! You've already lost all sensation in your toe, what's it
    going to take to convince you that something is seriously up? We are not
    MD's here.
    PLEASE CALL SOMEONE TO TAKE YOU TO THE HOSPITAL WHERE
    THEY CAN TO A COMPLETE BLOOD WORKUP! QUIT TALKING TO
    THIS DR. YOU'VE BEEN DEALING WITH AND GET TO A DR. WHO
    KNOWS WHAT THEY ARE DOING.
    Julie

    I sent a copy of this posting and others to St. Vincent Hospital's CEO via
    their web site, and then I copied that to various other people like the clinic I
    went to, my former therapist, my TBI case manager, the man at Department
    of Vocational Rehabilitation that I used to see for help, and many others...
    (Jill Ryan, Corrine Romero, Alan Graham, info@wholelifeclinic.org
    <info@wholelifeclinic.org>; Velma Root <VRoot@nmqio.sdps.org>;
    Traumatic Brain Injury; Carrie Cole, Claire Zimmerman <Czimmerm@aafp.
    org>; senator_bingaman@bingaman.senate.gov
    <senator_bingaman@bingaman.senate.gov>; Stahl, Cindra <cstahl@hpc.
    state.nm.us>; Heidi Hunt <hhunt@motherearthnews.com>

    I also copied all of these posts into a web page:
    it's not very well done because I'm not very well,
    but you can sort of get the idea...
    the idea was that all of them would be in one place so I wouldn't have
    to copy them to people one at a time, but then I did copy them to the
    CEO because I was afraid he wouldn't bother to go to my web page....

    my web page on this is at:

    www.health-boundaries-bite.com/My-Doctors-Failed-Me.html

    Thanks you guys.
    You were so much help.
    I'm glad the ER gave me some antibiotic,
    but I sure wish they'd given me enough.... or at least touched my toe to see
    how it's painful to the touch even though the injury was in mid-August.
    --------------------------------------------------------------------------------
    www.health-boundaries-bite.com/Fingernails.html
    Your fingernails reflect your health --
    Learn what warning signs to look for --
     Karen Kline
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